Search Results: Living with SMA issues
Anthem Updates Insurance Policy for Spinraza
Anthem Inc. recently announced an updated insurance policy for the use of Spinraza (nusinersen) for treatment of spinal muscular atrophy. The revised policy expands criteria […]
Jadon’s Hope Foundation Donates 10 New Tomato Feeder Seats
Cure SMA recently received a donation of 10 special tomato feeder seats from Jadon’s Hope Foundation. These were immediately sent out to families who were […]
Community Update on ISIS-SMNRx from Biogen and Isis
Biogen and Isis Pharmaceuticals recently provided an update on the clinical development of ISIS-SMNRx, which is currently being tested in Phase 3 clinical trials: Dear […]
Record Breaking Fundraising Year in Support of Cure Spinal Muscular Atrophy
Originally published on July22, 2013. Thank you to our amazing Chapter Leaders and SMA families who spend countless hours planning these wonderful fundraising events in […]
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