Support & Care
Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors
Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” […]
Read More ›Join Cure SMA in Celebrating the International Day of Acceptance
January 20 is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, SMA type II, who is the […]
Read More ›Bugenske Family Donates $17,000 to Cure SMA Equipment Pool
On Saturday, October 25, 2014, Leo’s Pride and over 600 participants ran and walked a 5K or 1 mile in support of Leo Bugenske and […]
Read More ›Fall 2014 Issue of Directions Now Online
The Fall 2014 issue of Directions is now available. Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from […]
Read More ›Cure SMA Launches Survey on Family Support Programs
We’ve just launched a survey to help determine the value and success of our family support and patient services programs. This survey is open to […]
Read More ›Registration Opens for the 2015 Annual SMA Conference
Registration is now open for the 2015 Annual SMA Conference. The 2015 Annual SMA Conference will be held in Kansas City, MO, at the Westin […]
Read More ›Applications Open for 2015 Annual SMA Conference Scholarships
Applications are now open for scholarships to the 2015 Annual SMA Conference, held June 18-21 in Kansas City, MO. You must complete an application form […]
Read More ›Cure SMA Provides Record Number of Resources to Families Worldwide
Along with funding spinal muscular atrophy research, Cure SMA provides thousands of families with vital family support and resources to help them live active, engaged […]
Read More ›Cure SMA Welcomes New Medical Advisory Council Committee Members
We are excited to welcome our new members to our Medical Advisory Council. Welcome to: Julie Parsons, MD Nancy Kuntz, MD Perry Shieh, MD, PhD […]
Read More ›Kinetic Sand Donated for Care Packages
We are incredibly grateful to have received a large shipment of Kinetic Sand Activity Kits to be included in the Newly Diagnosed Type II Care […]
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