Community Awareness
Adult Scholarships Offered for 2016 Annual SMA Conference
Cure SMA is pleased to announced that, thanks to a generous grant from The Dhont Family Foundation, we are offering conference scholarships to all adults […]
Global Genes Features Cure SMA in Patient Voice Project
Global Genes recently published, “From Molecules to Medicines: How Patients Can Share Their Voices Through the Drug Development Process.” This toolkit was the product of […]
Winter 2015 Issue of Directions Now Online
The Winter 2015 issue of Directions is now available! Please visit our Support & Care Publications page to download this issue or past issues of […]
Patients and Caregivers of Patients with Type II and III SMA Needed for Educational Research Survey
I am a medical education researcher fielding a survey to individuals or caregivers of individuals with Type II or III spinal muscular atrophy (SMA) to […]
Cure SMA Receives Generous Donation from Fighting for Kaiden Foundation
Cure SMA would like to thank the Fighting for Kaiden Foundation for their generous donations to Cure SMA programs. That generosity is providing both support […]
5th Annual Congressional Dinner Brings Together Families, Government and Industry
On December 1, more than 120 people from the SMA community—including government, and industry partners—gathered for the 5th Annual “Hope on the Hill” Congressional Dinner. […]
Cure SMA and Cytokinetics Announce Partnership to Advance Education and Awareness of Spinal Muscular Atrophy
ELK GROVE VILLAGE, Ill. and SOUTH SAN FRANCISCO, Calif., Dec 8, 2015 – Cure SMA and Cytokinetics Inc. (Nasdaq: CYTK), a leading muscle biology company, […]
5th Annual Hope on the Hill Congressional Dinner Advances SMA Advocacy
This year’s 5th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, December 1, bringing together families, government, and industry for an […]
Cure SMA Welcomes the North Jersey Chapter
Cure SMA is pleased to announce the creation of a new chapter in northern New Jersey, serving families and supporters with zip codes starting with […]
Cure SMA and Other Venture Philanthropy Leaders Share Insight at Partnering for Cures Panel
Cure SMA President Kenneth Hobby was a featured panelist at Partnering for Cures, a conference convened by the Milken Institute’s FasterCures initiative. At the event, […]