Community Awareness
New 21st Century Cures Discussion Draft Released
The US House of Representatives Energy and Commerce Committee has released a new 21st Century Cures discussion draft. This is a revised and expanded version […]
Read More ›Share Your SMA Story for a New Research Project
Cure SMA is reaching out on behalf of Communispace to invite people caring for a family member with Spinal Muscular Atrophy to participate in a […]
Read More ›Cure SMA Welcomes the Virginia Chapter
Cure SMA is pleased to announce the creation of a new chapter in Virginia. This chapter will also serve residents of Washington DC. Led by […]
Read More ›Cure SMA Releases Updated Overview of Research Model
When Cure SMA first started funding research thirty years ago, we had to build up from virtually nothing. It’s no easy task. Drug development relies […]
Read More ›How Our Cure SMA Community is Raising Awareness
Spinal muscular atrophy is the number one genetic cause of death for infants, and 1 in 50 people carry the genetic mutation that causes SMA. […]
Read More ›Cure SMA Annual Campaign Sets $1 Million Goal
When our year-end campaign began in mid-November, we set an initial goal of raising $540,000. Our community quickly met that challenge, so we increased our […]
Read More ›21st Century Cures Discussion Document Released
The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to […]
Read More ›Cure SMA Spring Event Season Kicks Off
Thanks to our dedicated and amazing chapter leaders, event volunteers, and SMA families, we’re looking forward to an exciting spring events season. Over the next […]
Read More ›Join Cure SMA in Celebrating the International Day of Acceptance
January 20 is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, SMA type II, who is the […]
Read More ›Together, We Made History
Thanks to you, we raised over $770,000 in the month of December, as part of our annual campaign. The stage is set for historic advances […]
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