Front Page News
Annual SMA Conference Registration Continues to Grow!
The 2020 Annual SMA Conference registration numbers are growing quickly! We expect the 2020 conference – which includes both the Family Conference and the Research […]
Community Statement from Scholar Rock Regarding SRK-015
Scholar Rock, a clinical-stage biopharmaceutical company focused on the treatment of serious diseases in which protein growth factors play a fundamental role, today highlighted key […]
Cure SMA and Biogen to Co-Host Webinar on DEVOTE Clinical Trial – Register Today!
On Tuesday, February 4th, at 11am CST (9am PST/10am MST/12pm EST) Biogen and Cure SMA will co-host a webinar for the SMA community. During the […]
Cure SMA’s New Year Letter for 2020
Dear SMA Community, We are excited to be kicking off a new year and a new decade full of promise for the SMA community. Over […]
Community Spotlight: The Forcier Family
Kara and Ryan Forcier, of Stillwater, Minn., were on a rollercoaster almost immediately after the birth of their son, Zachary. Zachary was born with skin […]
Community Spotlight: Scurria Family
John and Krista Scurria, of Baton Rouge, La., believe in a parent’s intuition. Krista first became worried about the development of her oldest child, Josh, […]
A Look Back at 2019: Cure SMA Research Year-in-Review
During our last fiscal year—July 1, 2018, to June 30, 2019—Cure SMA funded more than $7 million in new research and ongoing research. The resources […]
Cure SMA Awards Grants to Four States to Expediate the Implementation of SMA Newborn Screening
With an incidence of approximately one in 11,000, more than 360 infants will be born annually with spinal muscular atrophy (SMA). Newborn screening can help […]
Biogen Issues Q4 2019 Community Statement on Spinraza
Dear Members of the SMA Community, As part of Biogen’s ongoing commitment to individuals living with, and caregivers affected by, spinal muscular atrophy (SMA), we […]
Community Spotlight: The Veit Family
Elizabeth and Brian Veit live in Jefferson City, Mo., with their two children—Benjamin, who is 6 years old, and Kate, who is 5 years old. […]