Front Page News
Cure SMA Releases Updated Overview of Research Model
When Cure SMA first started funding research thirty years ago, we had to build up from virtually nothing. It’s no easy task. Drug development relies […]
Read More ›Cure SMA Hosts SMA Researcher Meeting this June
The Annual SMA Conference consists of two separate events that run in parallel. The first is focused on families affected by SMA, who gather for […]
Read More ›How Our Cure SMA Community is Raising Awareness
Spinal muscular atrophy is the number one genetic cause of death for infants, and 1 in 50 people carry the genetic mutation that causes SMA. […]
Read More ›Updates on Pharmaceutical Companies Investing in SMA Drug Development
Over the past decade, one of the most important advances in SMA drug development has been the number of pharmaceutical companies investing in treatments for […]
Read More ›Cure SMA Awards $140,000 Grant to Francesco Lotti, PhD, of Columbia University
Cure SMA has awarded a $140,000 research grant to Francesco Lotti, PhD, at Columbia University, for his project, “Role of Sumoylation in SMN Function and […]
Read More ›21st Century Cures Discussion Document Released
The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to […]
Read More ›Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors
Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” […]
Read More ›Join Cure SMA in Celebrating the International Day of Acceptance
January 20 is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, SMA type II, who is the […]
Read More ›Roche Buys Trophos to Continue Work on SMA Drug
Swiss drugmaker Roche has agreed to buy privately-held Trophos. Roche, the third largest pharmaceutical company in the world, will now bring its resources to help […]
Read More ›Cure SMA Announces New $30,000 Clinical Care Research Grant to Deborah Boroughs at BAYADA Home Health Care
Cure SMA has awarded a $30,000 clinical care grant to Deborah Boroughs, RN, MSN, for her project focusing on caregiver training. Individuals with SMA have […]
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