Front Page News
Cure SMA Awards $140,000 Grant to Francesco Lotti, PhD, of Columbia University
Cure SMA has awarded a $140,000 research grant to Francesco Lotti, PhD, at Columbia University, for his project, “Role of Sumoylation in SMN Function and […]
21st Century Cures Discussion Document Released
The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to […]
Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors
Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” […]
Join Cure SMA in Celebrating the International Day of Acceptance
January 20 is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, SMA type II, who is the […]
Roche Buys Trophos to Continue Work on SMA Drug
Swiss drugmaker Roche has agreed to buy privately-held Trophos. Roche, the third largest pharmaceutical company in the world, will now bring its resources to help […]
Cure SMA Announces New $30,000 Clinical Care Research Grant to Deborah Boroughs at BAYADA Home Health Care
Cure SMA has awarded a $30,000 clinical care grant to Deborah Boroughs, RN, MSN, for her project focusing on caregiver training. Individuals with SMA have […]
Cure SMA Awards $140,000 Grant to Sara Custer, PhD, of Indiana University
Audrey Lewis founded Families of SMA, now Cure SMA, 30 years ago. Audrey recognized early on the importance of attracting new and talented researchers to […]
Together, We Made History
Thanks to you, we raised over $770,000 in the month of December, as part of our annual campaign. The stage is set for historic advances […]
Cure SMA Announces New $50,000 Care Research Grant to Rebecca Davis in the Lab of Dr. Swoboda at University of Utah
Cure SMA has awarded a $50,000 clinical care grant to Rebecca Hurst Davis in the lab of Dr. Kathy Swoboda, for her project focusing on […]
NIH Releases Summary of the SO-SMART Workshop
During the Annual SMA Conference in Washington DC this past June, the National Institutes of Health (NIH) hosted a workshop on clinical trial design in […]