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Miller McNeil Woodruff Foundation Awards Cure SMA Generous Gift

December 22, 2017
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The Miller McNeil Woodruff Foundation recently awarded $87,000 to Cure SMA, in order to further research that will lead to treatments for all ages, stages and types of SMA. Their […]

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Cure SMA Statement on Tax Reform Bill and the Repeal of the Individual Mandate

December 21, 2017
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On Wednesday, Congress passed the most sweeping tax bill in a generation. Cure SMA has been monitoring and advocating on your behalf as this legislation went through the Congress. We […]

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Fall 2017 Directions Now Available for Download

December 21, 2017
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The Fall 2017 issue of Directions is now available. Please visit our Support & Care Publications page to download this issue or past issues of Directions. Our biannual newsletter builds […]

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2017 Research Year-in-Review

December 19, 2017
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Over our past fiscal year—from July 1, 2016, to June 30, 2017—Cure SMA has funded 28 projects with over $2.5 million in new research funding. This funding will be used […]

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Cure SMA Advocates Continue to Advance Newborn Screening Efforts

December 18, 2017
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SMA advocates across the country are working tirelessly with Cure SMA to educate state decision makers on newborn screening. In Maryland and Minnesota, the states’ Newborn Screening Advisory Committees voted […]

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AveXis Announces Plan to Initiate Phase 1 Trial in SMA Type 2 Utilizing Intrathecal Delivery of AVXS-101

December 13, 2017
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AveXis, Inc., a clinical-stage gene therapy company developing treatments for patients suffering from rare and life-threatening neurological genetic diseases, today announced the U.S. Food and Drug Administration (FDA) has notified […]

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