Latest News
Cure SMA Announces Partnership with The District Policy Group
Cure SMA has announced a new partnership with the District Policy Group, a boutique lobbying, public policy, and advocacy practice, to advocate for several key policy areas on behalf of […]
15th Annual New England Walk-n-Roll Raises Over $100,000
The 15th Annual New England Chapter Walk-n-Roll was held on Saturday, May 16, at beautiful DCR Wompatuck Park in Hingham, MA. The sun was shining as more than 600 people […]
Cure SMA Receives NIH Grant
For the seventh consecutive year, Cure SMA has received a grant from the National Institutes of Health (NIH) for the SMA Researcher Meeting. This year’s grant will go toward conference […]
In Memory of Ken Emerson
Cure SMA mourns the loss of Ken Emerson, volunteer at the Cure SMA National Office. Since his grandson Ryan was diagnosed with SMA type III, Ken became everyone’s favorite visitor […]
21st Century Cures Unanimously Passes Committee
Yesterday, the 21st Century Cures bill was unanimously passed by the House Energy and Commerce Committee. 21st Century Cures would overhaul how the Food and Drug Administration evaluates new medical […]
Collaborative Ways Cure SMA is Driving Research Results
Much as families in our community often work together to start a chapter, organize an event, or raise awareness of SMA, researchers must work together in order to find the […]