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21st Century Cures Discussion Document Released

January 28, 2015
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The US House of Representatives Energy and Commerce Committee has released the 21st Century Cures discussion document. The 21st Century Cures initiative was created to investigate how the government can […]

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Cure SMA-Funded Researcher Publishes Paper on Critical Issues for SMA Families and Doctors

January 21, 2015
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Matthew A. Halanski, a Cure SMA-funded researcher from University of Wisconsin – Madison, was the lead author on, “Assessing the Needs of the SMA Population,” an article recently published in […]

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Join Cure SMA in Celebrating the International Day of Acceptance

January 19, 2015
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January 20 is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, SMA type II, who is the founder of 3E Love and […]

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Roche Buys Trophos to Continue Work on SMA Drug

January 16, 2015
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Swiss drugmaker Roche has agreed to buy privately-held Trophos. Roche, the third largest pharmaceutical company in the world, will now bring its resources to help move olesoxime forward. Olesoxime is […]

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Cure SMA Announces New $30,000 Clinical Care Research Grant to Deborah Boroughs at BAYADA Home Health Care

January 14, 2015
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Cure SMA has awarded a $30,000 clinical care grant to Deborah Boroughs, RN, MSN, for her project focusing on caregiver training. Individuals with SMA have complex and unique medical needs. […]

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Bugenske Family Donates $17,000 to Cure SMA Equipment Pool

January 9, 2015
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On Saturday, October 25, 2014, Leo’s Pride and over 600 participants ran and walked a 5K or 1 mile in support of Leo Bugenske and Cure SMA. In addition to […]

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