Latest News

Genentech’s Risdiplam Showed Significant Improvement in Motor Function in People Aged 2-25 Years with Type 2 or Type 3 SMA

February 6, 2020
Posted in , ,

Genentech, a member of the Roche Group, today presented 1-year data from the pivotal Part 2 of the SUNFISH study, evaluating risdiplam in people aged 2-25 years with Type 2 […]

Read More ›

Cure SMA Adds New Equipment Item for Teens and Adults with SMA

January 28, 2020
Posted in ,

Along with funding SMA research and offering clinical care services, Cure SMA provides thousands of affected individuals and families with vital support and resources that help them navigate daily life […]

Read More ›

Summit of Strength Program Dates Confirmed

January 27, 2020
Posted in ,

Cure SMA is happy to announce the schedule for the 2020 Summit of Strength Program! Currently entering its third year, we have brought together nearly 3,000 community members from across […]

Read More ›

Genentech’s Risdiplam Meets Primary Endpoint in Pivotal FIREFISH Trial in Infants with Type 1 SMA

January 23, 2020
Posted in , ,

Genentech, a member of the Roche Group, today announced positive topline results from the pivotal Part 2 of the FIREFISH study, evaluating risdiplam in infants aged 1-7 months with Type […]

Read More ›

Annual SMA Conference Registration Continues to Grow!

January 10, 2020
Posted in ,

The 2020 Annual SMA Conference registration numbers are growing quickly! We expect the 2020 conference – which includes both the Family Conference and the Research & Clinical Care Meeting – […]

Read More ›

Community Statement from Scholar Rock Regarding SRK-015

January 10, 2020
Posted in , ,

Scholar Rock, a clinical-stage biopharmaceutical company focused on the treatment of serious diseases in which protein growth factors play a fundamental role, today highlighted key accomplishments of the past year […]

Read More ›
Scroll to Top