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Community Spotlight: Amber Bosselman

February 21, 2019
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Amber Bosselman is your typical 22-year-old college senior. She is currently studying psychology in Idaho and planning to get her master’s degree in industrial psychology. Amber’s life is similar to […]

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Show Your Rare. Show You Care.

February 13, 2019
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1 in 20 people will live with a rare disease at some point in their life. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging […]

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Cure SMA Awards $150,000 Grant to Laxman Gangwani, PhD, Texas Tech University

February 11, 2019
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Cure SMA has awarded a $150,000 research grant to Laxman Gangwani, PhD, at the Texas Tech University Health Sciences Center, for his project entitled, “Function of Senataxin as a Protective […]

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Register for Cure SMA’s Advocacy 101 Webinar: Learn How to Make a Difference

February 5, 2019
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On Wednesday, February 20th at 12pm CST (10am PST/11am MST/1pm EST) Cure SMA’s Policy and Advocacy team will hold a webinar to update the SMA community on the current advocacy […]

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The Cure SMA 2019 Goal List

January 29, 2019
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Start 2019 strong! Plan out your year using the Cure SMA 2019 Goal List. Have you completed any of the items already? Which ones will you add to your plans […]

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Cure SMA’s 2019 Commitments to the Community

January 28, 2019
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Dear Friends, Welcome to 2019! The start of the new year is a fantastic opportunity for us to share the exciting things we have planned for the new year. Here […]

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