Support & Care
We’re Celebrating Local Support
We’re doing everything we can to improve quality of life for children, adults and families affected by SMA. We give individuals and families the information […]
Read More ›Cure SMA and Parent Project Muscular Dystrophy Announce Collaboration
Today, Cure SMA and Parent Project Muscular Dystrophy (PPMD) announced their strategic collaboration to collect real-world data to improve the lives of those affected by […]
Read More ›New Dates and Locations Announced for 2019 Summits of Strength
Cure SMA is pleased to announce that we will be continuing the Summit of Strength Program in 2019, adding 20 new events from March through […]
Read More ›Show Your Rare. Show You Care.
1 in 20 people will live with a rare disease at some point in their life. Rare Disease Day improves knowledge amongst the general public […]
Read More ›Fall 2018 Issue of Directions Now Available
The Fall 2018 issue of Directions is now available online. Please visit our Support & Care Publications page to download this issue or past issues […]
Read More ›Teen and Young Adult Survey Extended Through January 21st
Are you or a family member between the ages of 12 and 25? Do you want to share your opinion on living with SMA and […]
Read More ›Fall 2018 Issue of Compass Now Available
The fall 2018 issue of Compass is now available online. This issue of Compass covers the SMA Care Center Network and its goal of developing an […]
Read More ›Register for Cure SMA’s Webinar on SMA Treatments and Clinical Trials
On Wednesday, December 12th, at 12:00pm CST (10:00am PST/11:00am MST/1:00pm EST) Cure SMA will hold a webinar updating the community on the latest information on […]
Read More ›Cure SMA is Thrilled to Launch a New Support Program for Teens and Adults with SMA
Along with funding SMA research and care, Cure SMA provides thousands of individuals and families with vital family support and resources that help people navigate […]
Read More ›Summit of Strength Program Receives Positive Feedback and Increases Attendance
Attendance and feedback have been extremely positive for this new program. The Cure SMA Summit of Strength Program kicked off in July and has continued […]
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