Support & Care
Cure SMA Welcomes Back Biogen as a National Premier Partner for 2018
Cure SMA is thrilled to welcome Biogen back as a National Premier Partner for 2018. As a part of their partnership, Biogen will be sponsoring […]
House and Senate Vote to Increase Federal Funding for Newborn Screening Programs
Today, Congress passed a new federal spending bill, increasing funding for several critical newborn screening programs, that the President also signed. The bill increases funding for the […]
Cure SMA to Host Inaugural Clinical Care Meeting
Clinicians across the country are invited to share experiences, successes and ideas at the inaugural SMA Clinical Care Meeting to be held on Saturday, June 16, […]
Cure SMA Welcomes New Medical Advisory Council Committee Members
We are excited to welcome 20 new members to our Medical Advisory Council (MAC). These clinicians represent eleven specialties, including specialties that were not previously […]
Last Week’s Webinar on Treatment Access and Clinical Trials Now Available
A recording of last week’s webinar updating the community on treatment access and clinical trials is now available online. A PDF of the webinar presentation […]
Cure SMA Receives Generous Gift
Cure SMA is extremely pleased to announce a generous $620,000 gift has been made to the organization. The donation was made anonymously in honor of […]
Additional Funding for SMA Care Centers Announced
Cure SMA is pleased to announce the second round of grants from $450,000 in funding, awarded to a total of 9 sites to help increase […]
Cure SMA Announces Local Educational Symposiums in 16 US Locations
Cure SMA is pleased to announce a slate of one-day local symposiums, beginning late spring and continuing into fall 2018. The symposiums will be held […]
Winter 2018 Compass Now Available Online
The winter 2018 issue of Compass is now available online. This issue covers Cure SMA’s community survey, and reviews how data is used to improve […]
Cure SMA Announces Funding for Care Centers Across the US
Cure SMA is pleased to announce the first grants from $450,000 in funding to help increase capacity at SMA treatment sites across the US. In […]