Community Awareness
Cure SMA to Host Clinical and Regulatory Webinar
On Monday, November 9, Cure SMA will be hosting a one-hour webinar on clinical trials and regulatory topics. The webinar will be held at 11:00am […]
Thank You to Jessica Moyer and Family
A note from Rich Rubenstein, Kenneth Hobby, and the entire Cure SMA team: Cure SMA has had the honor to have Jessica Moyer and her […]
FDA Engagement Update: The Voices of SMA
Thanks to our vibrant community, August was one of our largest and best awareness months ever, with unprecedented levels of public awareness and outreach for […]
Cure SMA and Isis Announce 2015 Holiday Card Contest
Back by popular demand, Cure SMA and Isis Pharmaceuticals are once again teaming up for a holiday card contest! This contest is open to children […]
Western New York Teen Wins Nickelodeon Halo Award
Fourteen-year-old Bailey Walter was recently selected from among 20,000 entrants to receive the August Nickelodeon Halo Effect Award. This award honors teens from around the […]
SMA Awareness Month Breakthroughs
Thanks to our vibrant community, SMA Awareness Month is off to a fantastic start. Through the Cure SMA Facebook page, and through your own posts, […]
Seven Individuals and Families Recognized for Their Contributions to the Community
Each year, while much of our community is gathered together, we use the Annual SMA Conference to recognize several individuals, families and foundations who have […]
Spring 2015 Directions Posted Online
The Spring 2015 issue of Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from all over the world […]
In Memory of Ken Emerson
Cure SMA mourns the loss of Ken Emerson, volunteer at the Cure SMA National Office. Since his grandson Ryan was diagnosed with SMA type III, […]
Meet the SMA Family that Helped Inspire 21st Century Cures
In a recent update on the 21st Century Cures Initiative, we shared how the SMA community has helped inspire this legistlation. Chairman Fred Upton has […]