Events & Fundraising
5th Annual Congressional Dinner Brings Together Families, Government and Industry
On December 1, more than 120 people from the SMA community—including government, and industry partners—gathered for the 5th Annual “Hope on the Hill” Congressional Dinner. […]
Great Progress, Greater Need
In the last few years, we’ve gotten closer to an approved treatment than we ever have been. Through research funded by Cure SMA, we’ve identified […]
5th Annual South Florida Gala of Hope Raises Record Total of $224,000
The 5th Annual South Florida Chapter Gala of Hope was a fantastic evening to raise funds and awareness of SMA. This year’s event has already […]
5th Annual Hope on the Hill Congressional Dinner Advances SMA Advocacy
This year’s 5th Annual “Hope on the Hill” Congressional Dinner will be held on Tuesday, December 1, bringing together families, government, and industry for an […]
SMART Gives $50,000 to Cure SMA to Support Research
Based in Buffalo, NY, the Spinal Muscular Atrophy Research Team (SMART) is a grass roots organization started in 2009 to raise awareness and funds for […]
Western New York Teen Wins Nickelodeon Halo Award
Fourteen-year-old Bailey Walter was recently selected from among 20,000 entrants to receive the August Nickelodeon Halo Effect Award. This award honors teens from around the […]
Spring 2015 Directions Posted Online
The Spring 2015 issue of Directions, our biannual family support newsletter, builds our community by sharing stories and experiences. Families from all over the world […]
High School Students Lead the Way at Concert for a Cure
The 15th Annual Concert for a Cure was held on Saturday, May 9, 2015, a the Diablo Country Club in Danville, CA and was a […]
15th Annual New England Walk-n-Roll Raises Over $100,000
The 15th Annual New England Chapter Walk-n-Roll was held on Saturday, May 16, at beautiful DCR Wompatuck Park in Hingham, MA. The sun was shining […]
Muscles for Mckenna Gala Raises Over $100,000
Held Friday, March 13, in Philadelphia, the 3rd Annual Muscles for Mckenna Gala has raised an incredible $107,000, and organizers are continuing to take donations […]