Support & Care
Cure SMA Launches Survey on Family Support Programs
We’ve just launched a survey to help determine the value and success of our family support and patient services programs. This survey is open to […]
Registration Opens for the 2015 Annual SMA Conference
Registration is now open for the 2015 Annual SMA Conference. The 2015 Annual SMA Conference will be held in Kansas City, MO, at the Westin […]
Applications Open for 2015 Annual SMA Conference Scholarships
Applications are now open for scholarships to the 2015 Annual SMA Conference, held June 18-21 in Kansas City, MO. You must complete an application form […]
Cure SMA Provides Record Number of Resources to Families Worldwide
Along with funding spinal muscular atrophy research, Cure SMA provides thousands of families with vital family support and resources to help them live active, engaged […]
Cure SMA Welcomes New Medical Advisory Council Committee Members
We are excited to welcome our new members to our Medical Advisory Council. Welcome to: Julie Parsons, MD Nancy Kuntz, MD Perry Shieh, MD, PhD […]
Kinetic Sand Donated for Care Packages
We are incredibly grateful to have received a large shipment of Kinetic Sand Activity Kits to be included in the Newly Diagnosed Type II Care […]
Medical Advisory Council Gathers for Fall 2014 Meetings
Members of the Cure SMA Medical Advisory Council (MAC) are holding two days of meetings, November 7-8, at the Cure SMA national offices. The MAC […]
Join Us in Kansas City
Earlier this year, we announced that our 2015 Annual SMA Conference will be held in Kansas City. We’ll be opening registration for the conference in […]
Cure SMA Announces New Subcommittee on Adults with SMA
Cure SMA recently announced the formation of the Subcommittee on Adult Outreach. This group will work to actively engage the adult SMA community in order […]
Applications for the Cure SMA Medical Advisory Board Due 10/1/14
Cure SMA is expanding its role in spinal muscular atrophy medical affairs at the national level through its Medical Advisory Council (MAC). The MAC sets […]