Genentech recently released an update on their continued collaboration with the SMA community and Evrysdi® tablet updates. They will continue to provide timely updates as they become available. Read the full community update letter here. “Looking back, 2025 was a time that was undeniably defined as a year of great change. We successfully navigated shifts, […]
Genentech Releases Winter SMA Community Update Letter Read More »
Cure SMA warmly invites you to join us at one of our 2026 Walk-n-Roll events—where community meets impact! This year, you can register and start fundraising for both spring and fall events right now. Walk-n-Roll isn’t just a fundraiser; it’s a celebration of progress, hope, and togetherness. It’s a chance to gather with others who
All 2026 Walk-n-Roll Events Are Open Read More »
Thank you to the individuals with spinal muscular atrophy (SMA), their family members, and other supporters who helped advocate for SMA community priorities in 2025. As the year comes to a close, we want to recognize the SMA community for all you did to raise awareness about SMA and advocate for policies that promote independence
Cure SMA Advocacy Highlights of 2025 Read More »
