Cure SMA is excited to officially open registration for our Spring 2024 Walk-n-Roll events! By participating in our Walk-n-Roll, you can make a real difference in the lives of those affected by SMA. Here’s how you can get started: Register to join OR create a team: Registration is free for everyone to attend. Your presence will […]
Spring 2024 Walk-n-Roll Registration is NOW OPEN! Read More »
Leland Ianno is eight years old, but he’s an old soul with a deep curiosity, a love of people, and a passion for history. His mom, Holly, says “Leland is fascinated by historical times but also the history of the people around him. He wants to know everything, and he’ll sit and have a conversation
Community Spotlight: Holly Ianno and Family Read More »
You did it! We’ve now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states with the addition of Hawaii at the start of 2024. You made this accomplishment possible by advocating and making the case at the state and national level for universal newborn screening. Your
100% of States Now Screening Newborns for SMA Read More »
