May 2020

Registration Now Open for the 2020 Virtual SMA Conference

Cure SMA has released the agenda and registration details for the 2020 Virtual SMA Conference, which will be held from Monday, June 8th – Friday, June 12th. We greatly look forward to virtually uniting as a community in just a few short weeks! It is our #SMAConferenceAtHome. Check out the Virtual SMA Conference Booklet for […]

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Join Cure SMA for Our First-Ever Walk-n-Roll Virtual Celebration Ceremony

Cure SMA will host our first-ever Virtual Walk-n-Roll Celebration Ceremony on Saturday, May 30, 2020 at 11 a.m. EDT/10 a.m. CDT/9 a.m. MDT/8 a.m. PDT. Join us as we celebrate everything our community has achieved so far in 2020, hear stories from SMA families from across the country, and demonstrate that the SMA community is stronger together!  

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Biogen Shares SPINRAZA Research Update

New SPINRAZA® (nusinersen) Data Reinforce Sustained Efficacy and Longer-Term Safety Across Broad Range of SMA Patients Biogen Inc. recently announced additional data from the SPINRAZA (nusinersen) clinical development program that further demonstrate the sustained efficacy and longer-term safety of SPINRAZA in a broad range of patients with spinal muscular atrophy (SMA). These new data were

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Cure SMA Announces a 2020 Virtual SMA Conference – United, At Home

Cure SMA has been hosting the Annual SMA Conference since 1988, bringing together leading researchers, clinicians, affected individuals, and families living with SMA. The weekend has traditionally been filled with a wide variety of opportunities to learn about the latest in treatments, research, advocacy, care, and support. But most of all, it was a time

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Cure SMA Announces Summit of Strength Virtual Webinar Series

For the past two years, Cure SMA’s Summit of Strength program has brought together thousands of SMA community members for the opportunity to network and learn about the latest advances in treatment, care, advocacy, and support. Considering event cancellations across the country due to the ongoing pandemic, Cure SMA is now offer these resources through

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Cure SMA Goes Virtual for Walk-n-Roll and Team Cure SMA Programs!

Cure SMA has always been about creating community. During these exceptional times, we know individuals and families with SMA need us now more than ever. That is why Cure SMA is excited to announce the launch of our Virtual Walk-n-Roll and Virtual Team Cure SMA programs! Although we cannot gather physically, we can create connections

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Biogen Releases Q2 Community Statement on Latest Milestones in Clinical Development Program

Dear Members of the SMA Community, In light of the COVID-19 pandemic and the burden it has placed on our healthcare system, Biogen is working with health systems, institutions, physicians, patients and their families to navigate potential SPINRAZA® (nusinersen) dosing delays related to COVID-19. The health and safety of patients is our primary concern, and

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Update from Scholar Rock on TOPAZ Phase 2 Clinical Trial of SRK-015 in Patients with SMA

Scholar Rock recently reported financial results for the first quarter ending March 31, 2020, highlighting progress and upcoming milestones for its pipeline programs—include the SRK-015 program for spinal muscular atrophy (SMA). Scholar Rock plans to report interim efficacy, safety, pharmacokinetic (PK), and pharmacodynamic (PD) results in the fourth quarter of 2020 for patients across the

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