Just added to this year’s conference schedule: Saturday night at Magic Kingdom Park! We are excited to announce that each conference attendee will get to participate in this classic Disney World evening, sponsored by Biogen. All registered participants will receive complimentary Saturday Disney Entrance to Magic Kingdom Park, and the opportunity to watch the Happily […]
Announcing an Evening of Wonder at Magic Kingdom Park Read More »
Cure SMA is pleased to announce a new webinar on interactions between the FDA and the SMA community. The webinar will be held on March 8, 2017, at 1:00pm EST (10:00am PST/ 11:00am MST/ 12:00pm CST). The goal is to provide both a broad overview of how our community can continue to productively engage with
Cure SMA to Host Webinar with the FDA and Patient Advocates Read More »
Registration is now open for the SMA Patient-Focused Drug Development (PFDD) meeting with the FDA. The PFDD meeting will be held at the College Park Marriott, near Washinton DC, on Tuesday, April 18. There are two primary ways to participate in this meeting: Attend in person. Registration for in-person attendance is free, but seating is
Registration Opens for the SMA Patient-Focused Drug Development Meeting with the FDA Read More »
On Tuesday, February 14, at 1:00pm EST (10:00am PST/11:00am MST/12:00pm CST), Cure SMA hosted a webinar updating the community on the status of Spinraza access. Among the topics covered were adminstration sites, insurance coverage, and community resources and support programs. We were happy to host an open, candid, and informal discussion of where our community
Spinraza Access Update Webinar Read More »
