September 2022

Special NBS Awareness Month Announcement: South Carolina Screens for SMA!

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Cure SMA is pleased to announce that South Carolina is now screening babies born in the state for spinal muscular atrophy (SMA). South Carolina Department of Health and Environmental Control (DHEC) officials shared the exciting news with Cure SMA in a written statement earlier today: Good news! The new multiplex PCR based method for screening […]

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Special NBS Awareness Month Announcement: South Carolina Screens for SMA!

Leave a Comment / Advocacy, Our Impact /

Cure SMA is pleased to announce that South Carolina is now screening babies born in the state for spinal muscular atrophy (SMA). South Carolina Department of Health and Environmental Control (DHEC) officials shared the exciting news with Cure SMA in a written statement earlier today: Good news! The new multiplex PCR based method for screening

Special NBS Awareness Month Announcement: South Carolina Screens for SMA! Read More »

Kids: We Invite You to Bake a Difference for Cure SMA!

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Cure SMA is calling all future bakers and pastry chefs to help us bake a difference for individuals with spinal muscular atrophy (SMA). Baking a Difference was created by kids for kids with sweet hearts and a love of sweet treats. From a red wagon selling treats outside a local grocery store to full-fledged enterprise

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Seat Elevators on Power Wheelchairs are a Necessity, not a Luxury, according to the SMA Community

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Individuals with spinal muscular atrophy (SMA) who utilize power wheelchairs for their mobility agree that seat elevation, which allows an individual to adjust their wheelchair seat, helps improve mental and physical health, increase quality of life, and promote independence. The SMA community’s views were shared in a public comment letter Cure SMA sent to the

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Cure SMA Launches Benefit-Risk Survey to Assess Patient Perspective on Treatment Possibilities and Risks

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Cure SMA is conducting a survey to understand our community’s perspectives on treatment possibilities and tolerance for the side effects of currently available and planned therapies. The results will help inform our future objectives and priorities as well as help us continue to bring the patient voice to regulatory authorities. Some of you may recall

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