December 2016

The Miller McNeil Woodruff Foundation Makes a Generous Contribution to Cure SMA

Leave a Comment / Community Awareness, Front Page News /

The Miller McNeil Woodruff Foundation awarded $87,000 to Cure SMA, in order to further research that will lead to a treatment and cure for SMA. Their gift will also help fund continued advocacy and awareness intiatives. The generous donation is made each year by Patrick and Meredith Woodruff, in honor of thier son, Miller, who passed away from […]

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Cure SMA-Funded Researcher, Chad Heatwole, Publishes Paper on Clinical Trial Outcomes in Adults with SMA

Leave a Comment / Front Page News, Research /

Cure SMA-funded researcher, Chad Heatwole, and his team, have published a paper, “What Matters Most: A Perspective From Adult Spinal Muscular Atrophy Patients”. This project was a pilot study funded by a grant from Cure SMA, and focused on developing a reliable method for adults with SMA to report on clinical trail outcomes that are

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Annual Congressional Dinner Brings SMA Community Together on the Eve of 21st Century Cure Bill Passage

Leave a Comment / Advocacy, Community Awareness, Front Page News /

On Tuesday, November 29, more than 160 people from the SMA community – including government and industry partners – gathered for the 6th Annual “Hope on the Hill” Congressional Dinner. Several Members of Congress attended the dinner, including Reps. Sean Duffy, Bill Foster, Jeb Hensarling, Bill Huizenga and Erik Paulsen. Other honored guests included U.S.

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