April 2026

The 10th Annual Cure SMA Community Update Survey Is Now Available

Leave a Comment / Front Page News, Latest News, Research, Support & Care /

Since 2017, 3,200 people have shared their experiences and unmet needs through the Cure SMA Community Update Survey. The Community Update Survey is an annual online questionnaire Cure SMA uses to collect perspectives and experiences of the SMA community over time. Every individual with SMA and their families bring a unique perspective that, collectively, help […]

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Breakthroughs Built Together: Help Cure SMA Close a Critical Research Funding Gap

Leave a Comment / Front Page News, Latest News, Our Impact, Uncategorized /

This spring, we’re asking our community to help us invest $1 million in basic research by June 30. Every breakthrough in spinal muscular atrophy (SMA) research has one thing in common. It wasn’t built by one person or one gift. It was built by people who believed progress was possible. This spring, we’re asking you to help build the next breakthrough

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