Author name: Michelle Pantoja

October has been National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we have been posting stories about adults with SMA in the workforce and are pleased to close out the month with this story about Sarah Boggess, 31, of Knoxville, TN. Sarah Boggess, of Knoxville, Tenn., is incredibly […]

October is National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we have been posting stories about adults with SMA in the workforce and are pleased to share this perspective column from Spencer Cook, as seen in the latest Fall issue of Directions. Living with a disability in the

October is National Disability Employment Awareness Month, with an official theme of Increasing Access and Opportunity. Throughout the month, we will be posting stories about adults with SMA in the workforce and are pleased to share this story about Kayley Shade. Kayley Shade is a 28-year-old sports fan from Hartford, S.D. She has lived with spinal muscular

September is Newborn Screening Awareness Month, a chance to talk about the progress we have made in getting spinal muscular atrophy (SMA) added to newborn screening panels and the work still to be done. This month, you will hear about newborn screening milestones, stories, and steps you can take to ensure all states screen newborns

The Power of the Spirit to Overcome   Cesar Rodrigues is a 32-year-old abstract painter from Worcester, Mass. His paintings have been showcased and sold in various galleries, and his first solo exhibition will be held May 2-June 27 at the Gallery Seven in Maynard, Mass. Cesar describes how his work “gives a feeling of

Kara and Ryan Forcier, of Stillwater, Minn., were on a rollercoaster almost immediately after the birth of their son, Zachary. Zachary was born with skin lesions that turned into blood clots, which almost led to having his limbs and digits amputated. Thankfully this was not the case, and after the skin lesions healed, Kara and