The Igbo and Yoruba proverb, “It takes a village to raise a child” has been in use for centuries and remains in use across languages and cultures due to its continued relevance. For Amber-Joi Watkins, her husband, Tommy Domalski, and their daughter, Céline, that village includes family and friends, as well as Céline’s pediatrician, her […]
Community Spotlight: Amber-Joi Watkins and Family Read More »
On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) about their lived experiences with SMA and their unmet medical needs. This Patient-Led Listening Session was a private teleconference attended by patient advocates, FDA representatives from the Center for Drug
Cure SMA Holds Patient-Led Listening Session with FDA Read More »
Nothing brings people together more than sharing a meal, but what if you could make that meal even more meaningful? We’re encouraging all members of our SMA community to consider hosting a dining fundraiser, where a portion of purchases are designated to support Cure SMA. This is also a great way to supplement your efforts
A Deliciously Easy Way to Fundraise for Cure SMA Read More »
On Thursday, August 4, 2022, six members of the SMA community had the opportunity to talk directly with the U.S. Food and Drug Administration (FDA) about their lived experiences with SMA and their unmet medical needs. This Patient-Led Listening Session was a private teleconference attended by patient advocates, FDA representatives from the Center for Drug
Cure SMA Holds Patient-Led Listening Session with FDA Read More »
Nothing brings people together more than sharing a meal, but what if you could make that meal even more meaningful? We’re encouraging all members of our SMA community to consider hosting a dining fundraiser, where a portion of purchases are designated to support Cure SMA. This is also a great way to supplement your efforts
A Deliciously Easy Way to Fundraise for Cure SMA Read More »
Cure SMA is pleased to announce that South Carolina is now screening babies born in the state for spinal muscular atrophy (SMA). South Carolina Department of Health and Environmental Control (DHEC) officials shared the exciting news with Cure SMA in a written statement earlier today: Good news! The new multiplex PCR based method for screening
Special NBS Awareness Month Announcement: South Carolina Screens for SMA! Read More »
Cure SMA is pleased to announce that South Carolina is now screening babies born in the state for spinal muscular atrophy (SMA). South Carolina Department of Health and Environmental Control (DHEC) officials shared the exciting news with Cure SMA in a written statement earlier today: Good news! The new multiplex PCR based method for screening
Special NBS Awareness Month Announcement: South Carolina Screens for SMA! Read More »
Novartis Gene Therapies has provided an update to the SMA Community. Check out the latest here!
SMA Community Update from Novartis Gene Therapies Read More »
Novartis Gene Therapies has provided an update to the SMA Community. Check out the latest here!
SMA Community Update from Novartis Gene Therapies Read More »
Cure SMA is calling all future bakers and pastry chefs to help us bake a difference for individuals with spinal muscular atrophy (SMA). Baking a Difference was created by kids for kids with sweet hearts and a love of sweet treats. From a red wagon selling treats outside a local grocery store to full-fledged enterprise
Kids: We Invite You to Bake a Difference for Cure SMA! Read More »
