Dear SMA Community, We want to provide an update on Biogen’s efforts to help ensure the health and safety of the SMA community amid the novel Coronavirus (COVID-19). As you may have heard, on February 26-27, Biogen held a strategic management meeting in Boston with primarily office-based employees. Following the meeting, several attendees developed flu-like […]

This article is part of a series of Cure SMA grant announcements being shared throughout the winter/spring. Cure SMA has awarded a $190,000 research grant to Umrao Monani, Ph.D., of Columbia University, for his project titled, “Genetic suppressors of the SMA phenotype.” Dr. Monani is associate professor of Neurology and Pathology & Cell Biology, and

This article is part of a series of Cure SMA grant announcements being shared throughout the winter/spring. Cure SMA and Cure SMA Canada have awarded a $100,000 research grant to Rashmi Kothary, Ph.D., at the Ottawa Hospital Research Institute, for his project titled, “Characterization of canonical disease features in a novel mouse model of SMA

This article is part of a series of Cure SMA grant announcements being shared throughout the winter/spring. Cure SMA has awarded a $150,000 grant to Timra Gilson, Ph.D., of Indiana University, for her project titled, “αCOP complex dependent axonal transport of RNA.” Dr. Gilson is a post-doctoral researcher working in the laboratory of Dr. Elliot

This article is part of a series of Cure SMA grant announcements that will be shared throughout the next couple of months. Cure SMA has awarded a $150,000 grant to Dmytro Morderer, Ph.D., of the Mayo Clinic in Jacksonville, Fla., for his project titled, “Effect of SMN deficiency on ribonucleoprotein assembly.” Dr. Morderer is a

This article is part of a series of Cure SMA grant announcements that will be shared throughout the next couple of months. Cure SMA has awarded a $170,000 research grant to Lyndsay Murray, Ph.D., at the University of Edinburgh, for her project titled, “Developing strategies to support enlarged motor units following SMN restoration in mouse

To help clinicians and the families they serve in the decision of when to administer therapy to infants identified with SMA via newborn screening, Cure SMA convened a working group comprised of 15 SMA experts to develop treatment guidelines. These guidelines, “Treatment Algorithm for Infants Diagnosed with Spinal Muscular Atrophy through Newborn Screening,” were originally