September 2015

SMA Awareness Month: What You Can Do with Support From Cure SMA!

Originally published on July 15, 2013. August is SMA Awareness month and families and friends around the country are joining together to help promote this devastating disease so that we can one day see a world where SMA is treatable and curable. So, how can you get involved?  There are numerous ways to raise much […]

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10th Annual Pennsylvania Chapter Cure SMA Walk-n-Roll Reaches Milestone Year

Originally published on July 15, 2013. The 10th Annual PA Chapter Cure SMA Walk-n-Roll, held May 19, 2013 at Lloyd Hall Recreation Center in Philadelphia, PA was a tremendous success!  Over 800 “walkers and rollers” turned out for a beautiful day of family fun. Seventeen teams contributed to the success of this year’s walk with

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New Update on Clinical Development of RG7800

Genentech recently provided an update on the clinical development of RG7800, an investigational SMN2 splicing modifier that is being studied as a potential treatment for spinal muscular atrophy (SMA): “Moonfish is studying RG7800, an investigational SMN2 splicing modifier that Genentech (Roche) is developing for the treatment of spinal muscular atrophy (SMA). This program is in

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