March 2017

Cure SMA Releases Care Series Booklet on Insurance

Leave a Comment / Front Page News, Support & Care /

Cure SMA is excited to announce the launch of our newest care series booklet, Choice and Connection to Care: A Health Insurance Roadmap for People Living with Spinal Muscular Atrophy (SMA) and Their Caregivers. You can download a copy of this booklet now from our website, or send an email to [email protected] to request a […]

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SMA is Submitted to the Federal Newborn Recommended Uniform Screening Panel (RUSP)

Leave a Comment / Advocacy, Front Page News, Our Impact /

Cure SMA and the SMA Newborn Screening Coalition are excited to announce we have completed the submission of SMA to the Recommended Uniform Screening Panel (RUSP). Administered by the Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC), part of the Department of Health and Human Services, the RUSP is a list of

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