Originally published on March 7, 2013. The Cure SMA spring event season is already making huge progress toward our goal of raising over $1.6 million to fund exciting new spinal muscular atrophy research and critical family support programs. Our Development Team here at Cure SMA is here to help you meet and exceed your personal […]
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Originally published on December 17, 2013. Cure SMA and the entire SMA community mourn the loss of 35 year old David Cunniff of Duanesburg, NY. David was in a work related accident last night and passed away this morning. David is the father to Caleb, who has SMA type II and Zach, and husband to
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Originally published on June 25, 2013. Thanks to hundreds of SMA families across the country, families, researchers and medical providers are able to come together to share information on spinal muscular atrophy to better support the SMA Community. This year marked the 24th Annual SMA Conference hosted by Cure SMA. Over 1,300 SMA families, researchers
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Originally published on October 22, 2013. Cure SMA is excited to announce our continued partnership with BAYADA Pediatrics for the signature Walk-n-Roll Program. This year, Cure SMA Chapters and families will host 47 Walk-n-Roll events throughout the US. Walk-n-Rolls are the signature event for the organization by bringing SMA families together and raising huge awareness
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Originally published on September 4, 2013. Throughout the month of August, the SMA Community joined together to raise awareness of SMA and hosted dozens of awareness events across the country! The SMA Community officially recognizes August as Spinal Muscular Atrophy Awareness month, an effort that Cure SMA has been coordinating since 1996. Families worked together
Originally published on July 15, 2013. August is SMA Awareness month and families and friends around the country are joining together to help promote this devastating disease so that we can one day see a world where SMA is treatable and curable. So, how can you get involved? There are numerous ways to raise much
SMA Awareness Month: What You Can Do with Support From Cure SMA! Read More »
Originally published on July 15, 2013. The 10th Annual PA Chapter Cure SMA Walk-n-Roll, held May 19, 2013 at Lloyd Hall Recreation Center in Philadelphia, PA was a tremendous success! Over 800 “walkers and rollers” turned out for a beautiful day of family fun. Seventeen teams contributed to the success of this year’s walk with
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Genentech recently provided an update on the clinical development of RG7800, an investigational SMN2 splicing modifier that is being studied as a potential treatment for spinal muscular atrophy (SMA): “Moonfish is studying RG7800, an investigational SMN2 splicing modifier that Genentech (Roche) is developing for the treatment of spinal muscular atrophy (SMA). This program is in
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Originally published on September 24, 2010. Cure SMA is pleased to announce the creation of a new chapter in Georgia! Located in Albany, GA, the chapter is excited to begin helping families throughout their state and fundraising to support research to find a treatment and a cure for SMA. Ashley Jones, Vice-President, has been crucial
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Originally published on January 16, 2012. Cure SMA is pleased to announce the creation of the Carolinas Chapter and the Capital Region which will be a satellite Chapter of Greater New York! Located in Raleigh, NC and Albany, NY respectively, the chapters are excited to begin helping families throughout their areas and fundraising to support
