Just over a month ago, we announced a year-end goal of $540,000 to help fund SMA research and family support. Thanks to the generosity of our community, we’re well on our way to that goal. Less than $20,000 separates us from that benchmark. We think we can do even more next year. Developing a treatment […]
Help Us Make History with $750,000 for SMA Research Read More »
We’ve just launched a survey to help determine the value and success of our family support and patient services programs. This survey is open to individuals affected by SMA, as well as parents and grandparents of those affected by SMA. Over the next several months, we’ll be evaluating which programs should be kept, and which
Cure SMA Launches Survey on Family Support Programs Read More »
We’re excited to announce that we have awarded $50,000 clinical care grant to Dr. Nilesh Mehta, for his project focusing on nutrition in SMA. Some individuals with SMA are at risk for undernutrition, which means they are not receiving enough nourishment. Others are at risk for overnutrition, which means they are consuming too much. Many
Dr. Arthur Burghes, a Cure SMA Scientific Advisory Board Member from Ohio State University, has published a paper on the first-ever large animal model of SMA. There are a number of unresolved research questions in spinal muscular atrophy, including whether we can correct SMN protein levels when symptoms are present, what is expected of biomarker
Results Published on First Large Animal Model of SMA Read More »
Registration is now open for the 2015 Annual SMA Conference. The 2015 Annual SMA Conference will be held in Kansas City, MO, at the Westin Crown Center from Thursday, June 18, through Sunday, June 21, 2015. Every year, Cure SMA sponsors a conference to bring together the leading SMA researchers, clinicians, and families living with
Registration Opens for the 2015 Annual SMA Conference Read More »
Applications are now open for scholarships to the 2015 Annual SMA Conference, held June 18-21 in Kansas City, MO. You must complete an application form in order to be considered. These scholarships are funded through generous donations, fundraisers, and sponsorships. An application deadline will be announced shortly. Decisions will be announced after all applications have
Applications Open for 2015 Annual SMA Conference Scholarships Read More »
In February 1994, Barbara and Gene Trainor lost their five-month-old daughter Erin to SMA type I. Throughout the past 20 years, the Trainor family, friends, and colleagues have raised funds for Cure SMA through annual events such as the Chesapeake Crab Feast and the Chesapeake Charity Golf Classic. In addition, they have provided comfort to
Erin Trainor Memorial Fund Reaches Milestone Read More »
The Miller McNeil Woodruff Foundation has awarded an amazing $87,000 to Cure SMA, to help fund research that will lead to a treatment and cure for SMA and to give support to local families. This generous gift will not only help increase our research momentum, but also honors the precious life of Miller McNeil Woodruff,
Miller McNeil Woodruff Foundation Gives Generous Gift to Cure SMA Read More »
Along with funding spinal muscular atrophy research, Cure SMA provides thousands of families with vital family support and resources to help them live active, engaged and hopeful lives. Cure SMA is a resource for stable, unbiased support, offering understanding and resources when they are most needed. In just the past year: We were contacted by
Cure SMA Provides Record Number of Resources to Families Worldwide Read More »
We are excited to welcome our new members to our Medical Advisory Council. Welcome to: Julie Parsons, MD Nancy Kuntz, MD Perry Shieh, MD, PhD Randal Richardson, MD, MMS Elizabeth McNally, MD, PhD Anne Stratton, MD Oren Kupfer, MD Samuel Rosenfeld, MD Diane Murrell, LCSW Stacey Tarrant, BS, RD, LDN Terri Carry, MS, PT Our
Cure SMA Welcomes New Medical Advisory Council Committee Members Read More »
